John Forman

Help Tim to meet some people with a rare disease just like his, at a conference in St Louis in July. It's a once in a lifetime opportunity.

Supporting NZ research into Sanfilippo disease. Top quality research at Massey University points to effective treatments for patients.

Jim Keenan’s 22 Great Rides will support Fragile X and other rare disorders. 80 yrs old. 22 trails. 2345 Km. 39 days. Extraordinary.