Coen's Specialist Rehabilitation

Coen was born on February 19, 2018. On March 24, 2018 at 5 weeks, Coen began having seizures and was hospitalised immediately.

The link to Coen's previous givealitte page is below and has a summary of his history:

https://givealittle.co.nz/cause/baby-coen-wylie

At 6 months old, Coen had a TPO (Temporal occipital parietal) disconnection. When this procedure was carried out, the surgeon cut too far forward in the frontal lobe and this has affected Coen's eyesight - he now only has peripheral vision. Now at 4.5 years old he cannot sit, walk or talk. There is no cover by ACC as they are blaming the seizures for his regression but the surgeon has admitted to inaccuracy whilst performing the surgery. We are in a place where ACC isn't wanting to admit that surgery was the cause of his disabilities.

Unfortunately the medical and therapeutic support in New Zealand has not provided the ongoing intensive help required for Coen's needs. Out of desperation Coen's parents and grandparents took him to Brisbane for an assessment and to look at further treatment options. The Centre Of Movement in Burleigh Heads is a Paediatric Neurological Rehabilitation Centre and have suggested 3 weeks of intensive treatment in November to help him with sitting and walking.

Logistically and financially this is a huge decision and commitment for Coen's parents. I know everyone wants the very best for Coen and many would like the opportunity to further support Coen in his journey ahead.