Hugo has Cerebral Palsy and an operation overseas would give him a better chance of living a more normal life.
Hi, I'm Hugo, and I am 3 years old. I was born at 33 weeks and have Cerebral Palsy.
The type of Cerebral Palsy I have is called Spastic Quadriplegia, which for me means, that both my arms and legs are very tight and makes walking (and other things) really hard and painful for me to do the simplest of tasks.
Currently I have a wheelchair to get around in, but I really want to be just like all the others my age, and do all the simple things most people take for granted.
There is a surgery called Selective Dorsal Rhizotomy (SDR), which is unavailable in NZ, but performed at St Louis Children's Hospital in America. SDR is a surgery that reduces the tightness of muscles. I was on the waiting list for a date in October 2017 but this has been postponed until 2018 (Please see the Update explaining this).
If I have the SDR surgery, it will help me function in a more natural normal way and will give me the hope of walking instead of being confined to a wheelchair. This will be life changing for me and my family.
This is going to be a long journey for me and my family. We are making our first step towards the fundraising by putting this on the give-a-little site. We are asking you to join us by making a donation.
Please check out this link:
We would like Hugo to be able to have this operation so he can live a more normal life.
'Working Together to make a Difference'
Funds raised will help Hugo and his family on this journey to allow him to have a better quality of life.
'The journey of a thousand miles begins with one step'
Almost there but some help still needed with the final funds to pay for accommodation. 17 August 2019
Thanks to everyone who's donated for Hugo's Malta - Walk This Way trip, we are very excited to see what 3 intensive weeks hold for little Hugo. We know it will be tough on him but feel the results will outweigh this.
Incredibly in 10 weeks we have raised $12k for the therapy, flights, insurance and rental car fees, now we are just short $3500 on this trip to go towards accommodation.