Oscar’s Fight Against the Baddies
Our little buddie has been diagnosed with acute myeloid leukaemia and needs to fight the baddies in his blood.Auckland
My name is Oscar Jimmy Edwards Bisman.
I am four years old.
And three quarters!
I have Leukaemia.
Leukaemia is a cancer of the white blood cells.
The type of Leukaemia I have is called Acute Myeloid Leukaemia. (AML).
It is a cancer that originates in my bone marrow & develops quickly.
No-one knows why this has happened, it just has. There’s nothing anyone could have done to change that. Now we just have to deal with it.
There’s heaps of questions and we’re really lucky that the people at Starship Childrens Hospital have lots of the answers.
I’m trying to be brave.
It’s scary and unknown and there’s lots of different stuff happening.
But I’m trying to be cool in this strange new place.
My room at the hospital is now going to be my new home for about six months the doctor said. Stink.
Ice blocks for breakfast are kinda ok though.
Dad says it’ll be ok because he’s here to help the Doctors fight the baddies and make them go away from my blood.
He’s told me we won’t stop until all the baddies are gone.
The goodies are going to win!
Mum is giving me so many kisses & cuddles which I pretend is yucky but I really like it and need heaps of them at the moment. Don’t tell her though because I’m tough. I’m a big boy.
My life has changed so much this week.
But this is my life now.
I’m going to keep being cheeky, silly, awkward, funny & saying inappropriate things to grown ups while we all laugh & cry in my room & today we will start fighting the baddies until they all go away forever.
Thank you for reading my story.
It’s for true life.
@ Auckland Starship Hospital
Judy Rooney's involvement (page creator)
Oscars Aunty, Gavins sister & Sarah’s sister in law
Use of funds
To support the immediate family (mum, dad, brother, and two sisters) who live in Tauranga with expenses while mum and dad share looking after Oscar in Auckland and to ensure that Oscar has everything he needs to fight the baddies
We hope you are all staying home and staying safe, been a lot happening since last update ....
Day 75 update.
Oscar is going ok so far.
(He has now spent 70 days in this room).
He finished round two of chemo over three weeks ago & is in recovery mode again.
(Each round takes around six weeks with the chemo treatment being 4-10 days and the rest is recovery & other treatments, medicines and surgeries).
This round needs to be successful.
He’s gone from “low risk” in round one to “high risk” for round two and beyond now.
This was due to the cancer cells coming back in higher numbers after round one.
That was tough.
His chemo dose goes up 10X now so it’s really toxic & hard on his body.
We’re really trying to smash those “baddies” so they don’t return.
He handled the week of chemo well but afterwards has had a number of complications that have knocked him around.
We had a pretty scary three days in PICU (Intensive Care) last week.
We are through that but he’s still struggling with fevers and lung issues.
“All part of the process” unfortunately.
Those smiling pictures belie a little 5yr old kid getting hammered with toxic chemicals and spending his days isolated in his room, struggling through a lot of discomfort with this shitty situation.
But we all need those smiles to get us through.
He’s brave our little boy.
Regardless, it looks inevitable that we will now be dealing with the reality of bone marrow transplant as his best chance of survival.
He’ll do another round of chemo but after that, instead of round four it’ll be a process to begin the transplant treatment.
We have a bit of a waiting game over the next week or two for final decisions/plans and treatment protocol direction but have started the process.
We’ve all had tests done (Sarah, Gavin & the kids) but none of us were an ideal match so we have gone offshore.
Thankfully we have found a suitable core stem cell that we have arranged to be sent from the UK for his transplant procedure.
The Starship staff, AML specialists and our lead Doctors & lead Nurse have been amazing at helping get this all sorted.
The people here are incredible and supportive & do all they can to make this experience less horrific.
This will mean even longer here in isolation & hospital for Oscar but it’s the best plan to get him home so that’s what we’re doing.
Playing the long game.
It’s better now that we are all up here living together.
It’s much easier.
Thankfully we had just moved the kids up the week before lockdown!
Gavin & Sarah want to say Thanks so much to Uncle Wal & Aunty Di who have been amazing, let us live with them in Orakei and helping so much with the other kids! ❤️
It means Sarah & Gavin can swap every other day/night so that helps heaps and means we both have more time with Oscar too.
Oscar thrives on seeing his brother & sisters when he can so it’s been good for him. It’s helped him so much to get through this so far.
Thank you again to everyone for all the kind messages and the ongoing support.
Give your kids a big hug today & spoil them with lots of time, cuddles & treats for Easter!
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This page was created on 1 Feb 2020 and closes on 2 Aug 2020.