Bringing the Purple Butterfly initiative to NZ
Bringing an established solution to NZ to reduce the stress and anxiety of neonatal families who lose a twin, triplet or other multiple.
Millie, a neonatal mum in the UK, had a great idea for reducing the stress and anxiety involved in certain neonatal journeys. With the blessing of Millie, and working with Multiples NZ, The Neonatal Trust are bringing this great idea to New Zealand.
Millie sadly lost Skye, one of her twins, very early on. While still in the NICU there were a few emotional moments that Millie endured that she believed could have been avoided with the use of a consistent sticker. The Purple Butterfly initiative was born . . .
In Millie's words:
We set up The Skye High Foundation in memory of our daughter. We have since created the Purple Butterfly sticker, which is meant to be placed on an incubator to let people know when a baby in a multiple pregnancy has passed away.
“None of the other parents knew what had happened or anything about Skye,” Smith explains.
“The comment was completely innocent and more out of humour. A parent of twins turned to me, when their babies were crying, and said, “You are so lucky you just have one.’ They weren’t to know that I did at one point have two. But the comment nearly broke me. I ran out [of] the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”
Jessica Watson, a mother of two surviving triplets who blogs at Four Plus An Angel, explains that the butterfly stickers would have been very helpful for her. “When your baby is in the NICU so many medical professionals come and go and it’s a heart-wrenching process to have to explain that they lost a sibling over and over again,” she says.
To learn more, more details are available here: www.babble.com/parenting/butterfly-stickers-milli-smith/
The funds raised will be used to:
- Make a donation to The Skye High Foundation (to acknowledge the work undertaken to create the resources)
- Create a supply of Purple Butterfly stickers for use in NICUs and SCBUs in New Zealand
- Develop posters, fliers and other resources and distribute these to all neonatal units in NZ
If our target is exceeded, we will put the funds toward:
* our general support of neonatal families. Examples of this can be seen in this gallery: https://goo.gl/O69Lpc
* the production of some new and enhanced resources for parents of multiples. These to be developed in conjunction with Multiples New Zealand
The Neonatal Trust's involvement
Bringing the Purple Butterfly initiative to New Zealand fits perfectly with The Neonatal Trusts role 'supporting families going through the stress and anxiety of a neonatal journey'. Working with Multiples NZ, we will produce and distribute the resources and also raise awareness and provide other necessary support.
Over 5,000 families go through the stress and anxiety of a neonatal journey. EVERY YEAR.
1 in 10 babies born in New Zealand arrive prematurely. Many more full-term babies have complications and illnesses that require specialist care in their earliest days. In all, over 5,000 babies spend time in a Neonatal Intensive Care Unit (NICU) or Special Care Baby Unit (SCBU) each year.
The Neonatal Trust exists to provide support to these brave parents and also support the wonderful people who care for these precious babies.
Examples of our support can be seen here: https://goo.gl/O69Lpc
Other page links
Thank you so much to everyone who supported this campaign to bring the Purple Butterfly initiative to New Zealand. We will provide an update when the material has been developed and distributed - this will be after World Prematurity Day (Nov 17th) which will take a lot of our focus for the coming weeks.
An update will also posted to this gallery: https://goo.gl/O69Lpc (that shows how we help neonatal families and their babies)
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This page was created on 6 Sep 2016 and closed on 16 Oct 2016.
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