Main image

Bringing the Purple Butterfly initiative to NZ

Closed Cause page created in the Health category by The Neonatal Trust

$595 of $5,000 goal

Given by 27 generous donors in 5 weeks

Share   Closed

Bringing an established solution to NZ to reduce the stress and anxiety of neonatal families who lose a twin, triplet or other multiple.

Main image

  Nationwide Sick Kids Awareness In Memory

Millie, a neonatal mum in the UK, had a great idea for reducing the stress and anxiety involved in certain neonatal journeys. With the blessing of Millie, and working with Multiples NZ, The Neonatal Trust are bringing this great idea to New Zealand.

Millie sadly lost Skye, one of her twins, very early on. While still in the NICU there were a few emotional moments that Millie endured that she believed could have been avoided with the use of a consistent sticker. The Purple Butterfly initiative was born . . .

In Millie's words:

We set up The Skye High Foundation in memory of our daughter. We have since created the Purple Butterfly sticker, which is meant to be placed on an incubator to let people know when a baby in a multiple pregnancy has passed away.

“None of the other parents knew what had happened or anything about Skye,” Smith explains.

“The comment was completely innocent and more out of humour. A parent of twins turned to me, when their babies were crying, and said, “You are so lucky you just have one.’ They weren’t to know that I did at one point have two. But the comment nearly broke me. I ran out [of] the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”

Jessica Watson, a mother of two surviving triplets who blogs at Four Plus An Angel, explains that the butterfly stickers would have been very helpful for her. “When your baby is in the NICU so many medical professionals come and go and it’s a heart-wrenching process to have to explain that they lost a sibling over and over again,” she says.

To learn more, more details are available here:

The funds raised will be used to:

- Make a donation to The Skye High Foundation (to acknowledge the work undertaken to create the resources)

- Create a supply of Purple Butterfly stickers for use in NICUs and SCBUs in New Zealand

- Develop posters, fliers and other resources and distribute these to all neonatal units in NZ

If our target is exceeded, we will put the funds toward:

* our general support of neonatal families. Examples of this can be seen in this gallery:

* the production of some new and enhanced resources for parents of multiples. These to be developed in conjunction with Multiples New Zealand

The Neonatal Trust's involvement

Bringing the Purple Butterfly initiative to New Zealand fits perfectly with The Neonatal Trusts role 'supporting families going through the stress and anxiety of a neonatal journey'. Working with Multiples NZ, we will produce and distribute the resources and also raise awareness and provide other necessary support.

About us

Over 5,000 families go through the stress and anxiety of a neonatal journey. EVERY YEAR.

1 in 10 babies born in New Zealand arrive prematurely. Many more full-term babies have complications and illnesses that require specialist care in their earliest days. In all, over 5,000 babies spend time in a Neonatal Intensive Care Unit (NICU) or Special Care Baby Unit (SCBU) each year.

The Neonatal Trust exists to provide support to these brave parents and also support the wonderful people who care for these precious babies.

Examples of our support can be seen here:

Other page links

Latest update

Update image

Thank you  18 October 2016

Thank you so much to everyone who supported this campaign to bring the Purple Butterfly initiative to New Zealand. We will provide an update when the material has been developed and distributed - this will be after World Prematurity Day (Nov 17th) which will take a lot of our focus for the coming weeks.

An update will also posted to this gallery: (that shows how we help neonatal families and their babies)

Read 1 more update

Latest donations

  • Lee Campny

    Lee Campny on 15 Oct 2016


    Every Little Bit Helps. Much Love xx


  • Pauline

    Pauline on 14 Oct 2016


    A fantastic idea. Good luck with this


  • Guest Donor

    Guest Donor on 13 Oct 2016




  • Belinda Clark

    Belinda Clark on 13 Oct 2016


    Such an important and wonderful thing.


  • Guest Donor

    Guest Donor on 13 Oct 2016


    In memory of Eve with much love from Sian and family xxx


Who's involved?

The Neonatal Trust's avatar
Created by, and paying to a verified bank account of, The Neonatal Trust

Registered Charity A Registered Charity has legal recognition under the Charities Act 2005.
Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.


Our other pages

Got a question for the page owner?

Ask one here

Any concerns?

Report this page
This page was created on 6 Sep 2016 and closed on 16 Oct 2016.
You might notice some changes - we've updated our page layout to give a better experience. We think we've hit the mark, but if something's not right, please let us know by emailing
$595 of $5,000 goal

Given by 27 generous donors in 5 weeks

  Closed Share
Share a link to this page to help spread the word




  Copy Link