Samuel's bucketlist dreams

Our 8yr old Samuel was born with a terminal illness called duchenne muscular dystrophy and as time has passed we have learnt that sam has a severe version of dmd and so we are really wanting to make sure sam has every opportunity to make his dreams come true. As we are a single income family this can be difficult.

Why is Samuel different to other Duchenne boys, most are not in wheelchairs until their teens. Samuel has a form that is fast tracking his decline and he is now under palliative care. Time is not on our side, please help us if you can, we are truly living the unimaginable.

Samuel is 8yrs old and has dmd, and lost the ability to walk over a year ago now and is now losing the ability to sit up at all.

Sam has been using a bipap machine at night since age of 4yrs old.

Sam is tube feed and has been since age of 2yrs old.

Sam has severe fatigue due to dmd which means he sometimes doesn't even do full weeks of school due to it.

Sam has bowel problems and this is all linked to the deterioration of his muscles and this will not get better it will continue to deteriorate, his arms are also detrated and is loosing the ability to lift them up.

His bucketlist dreams are things like

A white Christmas

Ride a ferris wheel

Play some arcade games

A train ride through the mountains

Have a real camping experience

Travel to some new places he hasn't been yet

Ride in a helicopter

See some fast cars

Go to the race car events

Visit as many animal places he can

And what ever other dreams he wants

We have another Givealittle page here: https://givealittle.co.nz/fundraiser/assistance-dog-for-terminally-ill-samuel

Previous Givealittle pages: https://givealittle.co.nz/cause/help-7yr-old-samuel-do-his-bucket-list , https://givealittle.co.nz/fundraiser/assistance-dog-for-samuel-1 , https://givealittle.co.nz/fundraiser/assistance-dog-for-samuel