Samuel's bucketlist dreams

$17,220 of $20,000 goal
Given by 341 generous donors in around 5 months

Samuel is a 8yr old boy who has a severe version of dmd and has progressive deteration from it.

Canterbury

Our 8yr old Samuel was born with a terminal illness called duchenne muscular dystrophy and as time has passed we have learnt that sam has a severe version of dmd and so we are really wanting to make sure sam has every opportunity to make his dreams come true. As we are a single income family this can be difficult.

Why is Samuel different to other Duchenne boys, most are not in wheelchairs until their teens. Samuel has a form that is fast tracking his decline and he is now under palliative care. Time is not on our side, please help us if you can, we are truly living the unimaginable.

Samuel is 8yrs old and has dmd, and lost the ability to walk over a year ago now and is now losing the ability to sit up at all.

Sam has been using a bipap machine at night since age of 4yrs old.

Sam is tube feed and has been since age of 2yrs old.

Sam has severe fatigue due to dmd which means he sometimes doesn't even do full weeks of school due to it.

Sam has bowel problems and this is all linked to the deterioration of his muscles and this will not get better it will continue to deteriorate, his arms are also detrated and is loosing the ability to lift them up.

His bucketlist dreams are things like

A white Christmas

Ride a ferris wheel

Play some arcade games

A train ride through the mountains

Have a real camping experience

Travel to some new places he hasn't been yet

Ride in a helicopter

See some fast cars

Go to the race car events

Visit as many animal places he can

And what ever other dreams he wants

We have another Givealittle page here: https://givealittle.co.nz/fundraiser/assistance-dog-for-terminally-ill-samuel

Previous Givealittle pages: https://givealittle.co.nz/cause/help-7yr-old-samuel-do-his-bucket-list , https://givealittle.co.nz/fundraiser/assistance-dog-for-samuel-1 , https://givealittle.co.nz/fundraiser/assistance-dog-for-samuel

Angela Ward's involvement (page creator)

Samuel is our dmd hero and we will do everything possible to make as many of his dreams come true

Use of funds

A white Christmas

Ride a ferris wheel

A train ride through the mountain

real camping experience

Travel

See fast cars

Go to the race car

Visit many animal places

Any extra will go into savings for when he is in hospital etc

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Latest update

Queenstown trip  29 June 2021

Posted by: Angela Ward

We are planning a trip to Queenstown and why we are down there we are going to try and tick off some more things we may also travel slightly more to make sure we achieve it we are also hiring a van as our own van dosnt have luggage room etc and we will be making sure he gets his helicopter ride 😀thanks all who have donated so far its been amazing doing it all so far

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Latest donations

Ross
Ross on 27 Sep 2021
$20
Guest Donor
Guest Donor on 22 Aug 2021
Private
Jessica
Jessica on 09 Aug 2021
Jess and Family xx
$100
Guest Donor
Guest Donor on 21 Jul 2021
$1.26
Guest Donor
Guest Donor on 14 Jul 2021
It was a pleasure to meet Sam and his family when you visited Mt Hutt. It's not much but I hope this helps make his dreams come true
$10

Who's involved?

Angela Ward's avatar
Created by, and paying to a verified bank account of, Angela Ward on behalf of My son Samuel
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This page was created on 24 May 2021 and closes on 24 May 2022.