Explore Raise funds Login Help

We've got our Charitable Status, We need funds to Start our Work

$509 of $3,000 goal

Given by 3 generous donors in 23 days

Share Closed

We have finally gotten our Charitable Status but we need start up funds to get our work done.

Nationwide

We are volunteers and many of us are on sickness benefits and are happy to volunteer our time, but we need the funds to pay for our transportation to group network meetings, training sessions, home help to see what we need as a group.

As the CEO of the Fibromyalgia Foundation, I have run a survey and the survey has pointed that Fibromyalgia patients feel lonely and isolated in pain as pain is something that cannot be seen or proven.

My aim is to conduct monthly networking meetings before pursuing other projects such as group fitness (which is needed for Fibromyalgia patients and it is something they are screaming for) but with limited resources, we cannot go very far at all.

Fibromyalgia Foundation New Zealand's involvement (page creator)

I am the CEO of the group and am a Fibromyalgia patient myself and therefore I understand exactly what these sufferers go through but, this is not for me, it is for them, I guess, I will get cured, by watching them get cured :)

About us

Fibromyalgia is a silent disease. It affects 3-5% of our population and 80% of sufferers are women between the ages of 25-55.

The causes of Fibromyalgia are unknown. It may be a combination of several issues such as hereditary, trauma or a chemical imbalance. It is called a syndrome because it is caused by various disorders.

Fibromyalgia sufferers vary in the way the illness affects them. However, in general Fibromyalgia is marked by widespread, unexplained pain. The pain varies in locations from day to day or even within hours. Apart from pain 90% of sufferers experience severe fatigue and tiredness and unrefreshed sleep upon waking up.