Cystic Fibrosis NZ

WHAT IS CYSTIC FIBROSIS?

Cystic fibrosis (CF) is an invisible condition, the physical impacts are not always obvious, which can make it difficult for others to fully understand the daily struggles and limitations that individuals with CF experience.

CF is a serious, life-shortening and life-threatening genetic condition with no cure. It primarily affects the respiratory and digestive systems. Thick, sticky mucus leads to blockages in the lungs and airways, causing chronic infections, reduced lung function, and a high risk of hospitalisation. Digestive issues can include difficulties absorbing nutrients, digestive pain, bowel problems and related symptoms like nausea, headaches, and fatigue.

THE IMPACTS OF LIVING WITH CF

CF can affect all aspects of life for New Zealanders living with the condition.

It can limit the ability of the whole family unit to participate fully in other aspects of life such as work, school, social events, sports, hobbies.

Depression and anxiety from stress, trauma, isolation, fear, grief, and isolation is common.

Extended hospital stays and the burden of hours of treatment.

Medicines do help but they're not a cure and they are not always available to, or effective for, everyone. Ongoing research and advocacy are necessary to ensure future developments in treatments, and expanded access to therapies that will work for all people with CF.

ABOUT CFNZ

CFNZ was founded in 1968 by parents, for parents. We have a long history of being committed to improving the lives of those affected by CF. Our vision is that all people with CF are thriving and living healthy lives.

We deliver valuable support programmes and services to individuals with CF, their families and whānau such as emotional, financial and physical support.

CF is a condition for whole of life. Our community are in this for life, and so is CFNZ

THE IMPACT OF YOUR DONATION

Your donation really does make a difference, helping to sustain and expand the support programmes and services that address the unique needs of the CF community in New Zealand.

These resources can help individuals with CF and their families navigate the challenges they face and access the necessary tools and information for managing the condition effectively, enabling them to live well with cystic fibrosis.

CFNZ was established in 1968 and is a registered charity under the Charities Act 2005, registration number CC10274.