Cystic Fibrosis NZ

Cystic Fibrosis NZ

CFNZ is the continuous thread in the lives of people with CF and their family, walking beside them to provide support for quality of life.

Auckland

WHAT IS CYSTIC FIBROSIS?

Cystic fibrosis (CF) is an invisible condition, the physical impacts are not always obvious, which can make it difficult for others to fully understand the daily struggles and limitations that individuals with CF experience.

CF is a serious, life-shortening and life-threatening genetic condition with no cure. It primarily affects the respiratory and digestive systems. Thick, sticky mucus leads to blockages in the lungs and airways, causing chronic infections, reduced lung function, and a high risk of hospitalisation. Digestive issues can include difficulties absorbing nutrients, digestive pain, bowel problems and related symptoms like nausea, headaches, and fatigue.

THE IMPACTS OF LIVING WITH CF

CF can affect all aspects of life for New Zealanders living with the condition.

It can limit the ability of the whole family unit to participate fully in other aspects of life such as work, school, social events, sports, hobbies.

Depression and anxiety from stress, trauma, isolation, fear, grief, and isolation is common.

Extended hospital stays and the burden of hours of treatment.

Medicines do help but they're not a cure and they are not always available to, or effective for, everyone. Ongoing research and advocacy are necessary to ensure future developments in treatments, and expanded access to therapies that will work for all people with CF.

ABOUT CFNZ

CFNZ was founded in 1968 by parents, for parents. We have a long history of being committed to improving the lives of those affected by CF. Our vision is that all people with CF are thriving and living healthy lives.

We deliver valuable support programmes and services to individuals with CF, their families and whānau such as emotional, financial and physical support.

CF is a condition for whole of life. Our community are in this for life, and so is CFNZ

THE IMPACT OF YOUR DONATION

Your donation really does make a difference, helping to sustain and expand the support programmes and services that address the unique needs of the CF community in New Zealand.

These resources can help individuals with CF and their families navigate the challenges they face and access the necessary tools and information for managing the condition effectively, enabling them to live well with cystic fibrosis.

CFNZ was established in 1968 and is a registered charity under the Charities Act 2005, registration number CC10274.

More about us

CFNZ provides financial, educational and emotional support to people with CF and their families in New Zealand. We educate and empower people with CF to be excellent managers of their own condition and live a life unlimited by CF.

Read more

Latest donations

AK Rai
You’re the champ bro
$30
Ben Prince-Saxon

Thank you AK!!

Ben Prince-Saxon
Tim L
An inspiration to the masses, love your work!
$25
Ben Prince-Saxon

Thank you Tim!

Ben Prince-Saxon
Ché
$50
Ben Prince-Saxon

Thank you Ché!!

Ben Prince-Saxon
Liam, Court, Beau & Luca
Liam, Court, Beau & Luca 1 day ago    12 Marathons in 12 Months for Cystic Fibrosis New Zealand
What a weapon!!
$500
Ben Prince-Saxon

From the family that inspired me to do something like this!!! Thank you guys so much 💙

Ben Prince-Saxon
DJ
You’ve got this!!
$50
Ben Prince-Saxon

This donation is a meme. Thank you DJ!!

Ben Prince-Saxon

Who's involved?

Cystic Fibrosis NZ's avatar
Created by, and paying to a verified bank account of, Cystic Fibrosis NZ (Charity)
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A Registered Charity has legal recognition under the Charities Act 2005.
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Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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