Muscular Dystrophy Association of New Zealand

  Auckland
Organisation page created in the Health category

The MDA is an NZ not-for-profit providing support to people affected by neuromuscular conditions. Neuromuscular conditions result in muscle

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Treatment

The Muscular Dystrophy Association of New Zealand (MDANZ) is a member-led organisation and we have been supporting Kiwi families diagnosed with genetic neuromuscular conditions for almost 60 years.

Our members are of all ages and backgrounds, as symptoms can appear at birth, or for others, not until much later in life. Neuromuscular conditions are unpredictable and there are limited treatment options.

We are a registered charity and rely almost entirely on voluntary donations from the general public, trusts and other businesses/organisations to continue our work in the community.

Together with our regional branches we support individuals, families and whānau by providing specialist information, practical resources, personalised support, peer to peer networks, advocacy, and campaigns for improving public awareness of rare neuromuscular conditions.

Through our research trust, we work to improve care standards and offer hope for the future by funding research and facilitating access to clinical trials.

To find out more about the conditions we cover and the services and support we can offer, visit www.mda.org.nz or contact our national office toll free on 0800 800 337, or by email info@mda.org.nz.

Organisation details

We are a member-led non profit supporting kiwi families with neuromuscular conditions for almost 60 years. We provide specialised information on these conditions, an outreach Fieldworker service, promotion and education, workshops and counselling, advocacy, lobbying, help with equipment provision and quarterly publication of In Touch magazine. We undertake research and provide grants funding to support local research into neuromuscular conditions.

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This organisation page was created on 14 Aug 2013.

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