The MDA is an NZ not-for-profit providing support to people affected by neuromuscular conditions. Neuromuscular conditions result in muscle
The Muscular Dystrophy Association of New Zealand (MDANZ) is a member-led organisation and we have been supporting Kiwi families diagnosed with genetic neuromuscular conditions for almost 60 years.
Our members are of all ages and backgrounds, as symptoms can appear at birth, or for others, not until much later in life. Neuromuscular conditions are unpredictable and there are limited treatment options.
We are a registered charity and rely almost entirely on voluntary donations from the general public, trusts and other businesses/organisations to continue our work in the community.
Together with our regional branches we support individuals, families and whānau by providing specialist information, practical resources, personalised support, peer to peer networks, advocacy, and campaigns for improving public awareness of rare neuromuscular conditions.
Through our research trust, we work to improve care standards and offer hope for the future by funding research and facilitating access to clinical trials.
We are a member-led non profit supporting kiwi families with neuromuscular conditions for almost 60 years. We provide specialised information on these conditions, an outreach Fieldworker service, promotion and education, workshops and counselling, advocacy, lobbying, help with equipment provision and quarterly publication of In Touch magazine. We undertake research and provide grants funding to support local research into neuromuscular conditions.
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New Zealand registered charity
Is registered with the Department of Internal Affairs (DIA), Charity Services (formerly Charities Commission) as a charity.
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