Hope for Hollie
Helping Hollie and her family fight this fight that no child or family should ever have to go through. #hopeforhollieAuckland
Beautiful 7-year-old Hollie Beattie is currently in the middle of the fight of her life.
In July 2018 Hollie was diagnosed with a rare, aggressive form of cancer called Neuroblastoma.
Since then, Hollie and her family, Dad John, Mum Jo and Big Brother William have been on the most harrowing roller coaster of a journey.
After an initial round of chemotherapy and surgery to remove the main tumor, it was devastating for them to hear that the repeat tests showed the treatment had failed to make an impact on the disease in her bone marrow. It was a heart-breaking outcome.
As a result, Hollie was unable to begin the first stem cell transplant that had been scheduled for January 2019, and after an agonizing week waiting for approval from the USA for an immunotherapy drug, she began a new set of combined chemo and immunotherapy cycles on the 19th December, and made it home just in time for Christmas after the first round.
Following these rounds of treatment, Hollie has also now completed two stem cell transplants which included two sets of four week stays in Starship hospital, with Hollie in isolation each time.
Most recently, Hollie has completed additional weeks of radiation treatment, and is now in the middle of her second round of immunotherapy treatment, which will take her through to January 2020.
Hollie is incredible, her resilience is awe inspiring and her courage is unfathomable. She is always the first to offer out cuddles of love and smiles of happiness, regardless of what she has been going through, and she has been through a lot.
John, Jo and William are stoic and have created a positive and loving outlook around what is a truly grueling time for them all.
The family is strong, but the future is still somewhat uncertain for them, and that is where we come in.
A donation of any size, be it small or large, will enable John and Jo to spend every minute possible making the most out of life for both Hollie and William, and this is all that they want to do.
Thank you for taking the time to read their story.
Salome Schlebusch's involvement (page creator)
Friends of the family
Use of funds
As a striving young Auckland family, Jo and John are both working full time but we know that over this extremely difficult time there will be additional and unexpected expenses. This Givealittle page will help them to keep on keeping on.
Other page links
As we ventured out of a safe New Zealand, we donned our face masks and set out for our 30 hour plane journey. It has made us realise, even more, how lucky we are in NZ; safe from the worries of Covid, enjoying summer and sometimes forgetting what is going on in the rest of the world. We arrived without any issues and were kindly welcomed by a friends sister, so thankful for the help as we begin our time in a strange and new place. We began our first week with a full schedule of hospital appointments, which wasn’t without it's challenges. We met some lovely people, but for Hollie it was strange, new and pretty tough.
Week two was quieter for us, but Hollie’s blood counts continued to drop, a consequence of her last chemotherapy, and apparently to be expected. The hospital were fantastic and helped her really quickly and she began improving and feeling more like herself. By the end of the two weeks she had completed many tests, but also her 3 routine checks: MRI; MIBG scan; Bone Marrow Biopsy; and we met with her Doctor who confirmed that Hollie's scans are good and she was cleared for the trial!
The trial documents have now been signed: THANK YOU TO EVERYONE WHO HELPED US GET THIS FAR 🍾🤩!
Hollie’s latest blood test is also positive, her counts have improved and appointments are coming in fast now to get Hollie prepared for treatment. She is being scheduled for surgery next Tuesday for the placement of an ommaya reservoir (like a port) into her head which will receive the injection into the spinal fluid. They plan is to have this checked by next Friday to test the flow of spinal fluid (ventriculography). All going well they are planning for the first treatment of the on Friday 12 February. The arrival of the radioactive antibody (131I -Omburtamab) will still be dependent on flights out of the US, where it is made, 😬. So fingers crossed for a smooth timeline and transit🤞🛩.
I will keep you updated as we continue on, but just wanted to reiterate how grateful we are, and so very lucky to have had all your support on this crazy journey. We wouldn’t be here without you all.
Gracias y buenos noches xx
For more regular updates, you can follow Hollie’s journey on her facebook and Instagram page.
Instagram - @hopeforhollie
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This page was created on 10 Aug 2018 and closes on 22 Apr 2021.