Help Ka'iulani beat Neuroblastoma
- $128,817.00 donated
- 1,907 generous donors
Our little girl Ka'iulani, who has just turned two, is fighting a rare cancer called Neuroblastoma, which has spread throughout her body
Three-year-old Ka’iulani is fighting a high profile battle against a rare type of cancer, Neuroblastoma, after 50 GP visits failed to diagnose the disease. Since her diagnosis Ka’iulani has gone through chemotherapy and two major surgeries to remove 75% of the pineapple size tumour in her abdomen. The cancer has also caused tumours and bone disease throughout her body.
Ka’iulani has been fortunate to become the first New Zealand patient to receive one of the few remaining international places on a US immunotherapy drug trial, but for the wrong reason, her cancer is not responding to chemotherapy. The immunotherapy has promising and proven results and she has begun an intensive treatment regime that will continue for the next 12 months provided she can safely comply with the strict trial protocols.
Treatment plans for complex cancers evolve continually and the immunotherapy forms only one aspect; the secondary tumours and bone disease will require therapies not available in NZ. Starship doctors have advised that at the conclusion of the drug trial Ka’iulani will require treatment only available overseas to further remove the cancer and prevent relapse, including removing the remaining tumour from her spine. They are currently consulting with doctors in New York, who are reviewing her scans, to develop the best approach.
Regardless of the final plan they develop, Ka’iulani and her whanau will need to travel overseas for treatment. We are raising funds to enable that to happen and give Ka’iulani the best fighting chance. All funds raised are being held in a separate bank account so that they are prepared when the time comes to proceed with the next phase.
Thank you for supporting Ka’iulani Forbes.
If you would like to, please feel free to follow her journey on Facebook by joining the group Ka'iulani's Journey
Page created by:
I'm Ka'iulani's Aunty Alex. Since receiving her diagnosis we have had many people ask how they can donate to support our little girl and her ongoing medical costs.
All funds raised benefit:
Funds will be paid to a verified bank account of Manihera Forbes on behalf of Ka'iulani Forbes.
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